Where we live:

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Here is a list of the names of some of the children with NOMID / CINCA, their birthdays, parents names, locations and email addresses:

Patient

 Birthday Parents Location email / address
Kennedy Anderson 1999 Traci and Kyle Grand Rapids, MI, USA none at the moment, contact through Camille and Terry Lieffers
Michael Atkinson 1 Feb 2004 Karen Brampton, Ontario, Canada karenatkinson@rogers.com
Matilda May Bailey (Tilly) 26 Oct 1997 Colin and Debbie Essex, UK colin_bailey@btopenworld.com
Alex Barton 27 March 1996 Kate and John Houston, TX, USA jkbarton@ix.netcom.com
Ross Binnie 6 Aug 1999 Lorna and Kenny Scotland, UK 22doune.freeserve.co.uk
Jillian Bush 1993 Cathy near Cleveland, OH cb0202@aol.com
Tiffanie and Becky (Mom) Bissett 25 Aug 1995;
3 May 1976		 Becky and Ryan Kenmore, WA, USA beckybakko@yahoo.com
Sebástian Jesús Burgo 14 Jan 1994 Cristina Wallner Ushuaia, Tierra del Fuego, Argentina jacobe@arnet.com.ar (email address of cousin: Monica Arguello)
Molly Campbell 4 Feb 1999 Evie and David Glasgow, UK D.Campbell@philosophy.arts.gla.ac.uk
Isabela Condé 6 May 1995 Beth and Mauro Belo Horizonte, Brazil mauroconde@ig.com.br
Kristen Downey 26 July 1996 Sue and Alan Norfolk MA, USA downey5@earthlink.com
Carina van Duijvenbode 10 July 1989 Marleen and Wim Katwijk, The Netherlands marleen@duyvenbode.tmfweb.nl
Seth Durrant 23 Sept 1999 Karen and Nate San Francisco, CA, USA site_manager@nomidalliance.net
Dario Ben Eberlein 8 June 2000 Tanja and Hans Germany eberlein@gerlprint.de
Zachary Eise 25 June 1984 Jan DaPrato St Louis, MO, USA jand71054@yahoo.com
Erika Floes Amy and German Muskegon, MI jmduca@webtv.net (email of Erika's grandmother)
Glenn Hand 22 Sept 1999 Maxine and Wayne Australia handandhand@bigpond.com
Daniel Howlett 28 Jan 1991 Elaine and Mark Rochdale, UK elaine@mark87.freeserve.co.uk
Marcia Janower 24 June 1983 Flo and Ken Kitchener, Ontario, Canada janower@golden.net
Buhyan Kim 30 July 2001 Ken and Asta Jinju, South Korea won747@yahoo.com
Alice Lieffers 30 April 1985 Camille and Terry Grand Rapids, MI, USA lieffers@tds.net

Holly Lim

 24 Nov 1996 Melhoney and Steve London, UK deck51uk@yahoo.co.uk
Shannon Maassen ?1995 The Netherlands fam_maassen@wish.net
Charlie Moore 1 July 2002 Karen and Ian near London, UK karenmoore30@yahoo.com
Eline Noordhof 22 Feb 1993 Clara and Gerard Amersfoot,The Netherlands Gerard.noordhof@jvv.nl
Maxwell Okazaki 27 March 1998 Belinda and Derek ?Los Angeles, CA, USA belin@bigfoot.com
Lee Parker 12 Jan 1992 Marie and Jonny Bakersville, NC, USA marikochan68@hotmail.com; jonnre@mitchell.main.nc.us
Luke Parry 1989 Eileen Liverpool, UK
Susan Price 8 Oct 1994 Mary and Richard Knighton, UK llanshay1@farmersweekly.net
Miranda Putvin 10 May 1995 Sherri and Jim Weedsport, NY, USA mntcreek@zhighway.net
Kerstin Rohland 9 Dec 1986 Birgit and Kai Germany fam.rohland@t-online.de
Clare Sammé 16 Sept 1980 Anne, David Bedfordshire, UK csmiley16@hotmail.com
Fynley Smith 7 Apr 2004 Lisa, Colin UK colinsmith25@msn.com
Salvador Villagomez Jr 11 Dec 1995 Maria (Mom, Spanish speaking) Paola (sister, willing to be English translator) Eagle Pass, TX mariavillagomez_08@yahoo.com;
polyv_09@hotmail.com
Phillip Wisniewski 25 Sept 1996 Kim Baltimore, MD, USA kalbert11@msn.com
Javier 1994 San Lorenzo de Calatrava, Spain parents would like to contact other Spanish speaking parents with Nomid.  Contact John jkbarton@ix.netcom.com if you can help.
Phillip Wisniewski 25 Sept 1996 Kim Baltimore, MD, USA kalbert11@msn.com

email John or Kate Barton to change the information above or to add a new name to the list