14 Feb 2006:

Details about Seth Durrant added to Contacts, Stories and Photos pages

30 Jan 2006:

Link to Nomid Alliance Foundation added

13 Nov 2005:

Photos of Michael Atkinson added to Photos page

15 Oct 2005:

Website now hosted at new location to overcome access limitations of the previous site.  The home page address has moved from http://pw1.netcom.com/~jkbarton/nomid/Html/nomid_home_page.htm to www.nomidsyndrome.com.   Let John know if you have problems getting to the new site at jkbarton@ix.netcom.com.

More contacts (Michael Atkinson, Fynley Smith, Seth Durrant), stories and photos added to the website.  

5 Sept 2005:

New contacts and updates made to website.   

2 Jan 2004:

2484 hits on website in 2004, up slightly over 2003 and busiest year to date.   9478 hits since Aug 2000.  

15 Oct 2004:

Photo of Erika Perez added to Photos page 

23 May 2004:

New member, Isabela Condé, added to the Contacts and Stories page. 

8 Feb 2004:

New member, Salvador Villagomez, added to the Contacts and Photos page. 

NIH visitor and Children's Inn links added to the the common bottom border of the website.  Reference to new article, 'de novo CIAS1 mutations....' added to the Articles page.  Medications page updated with references to Anakinra.

30 Nov, 4 Oct 2003:

Photos of Zachary Eise added to Photos page.

9 Sept 2003:

New contact, Karen and Ian Moore and their son Charlie.  See Contacts and Stories pages for more details.

20 July 2003:

Articles and FAQ pages pages updated with new links to NIH related material and several broken links to earlier articles repaired.  Colin Bailey's email address updated.

6 Sept 2002:

Two new contacts:

21 Aug 2002:

New photos of Alice Leiffers and Alex Barton, see Photos page.  Lorna and Kenny Binnie's surname corrected.  Colin Bailey's email updated (some time ago).

17 Aug 2002:

New contact: Lorna and Kenny Binnie (previous surname Doune incorrect) and their son Ross from Scotland.  See Contacts and Stories pages for more details. 

Link to abstract of new article, 'Chronic infantile neurological cutaneous and articular syndrome is caused by mutations in CIAS1, a gene highly expressed in polymorphonuclear cells and chondrocytes.'added on Articles page.

Minor changes to website organization.  Please ignore advice posted in Aug to update your bookmark to the home page -- the old one with the crab in the title banner is back! (restored primarily because word searchs in Google, Yahoo, etc look for a page with that address).   If you updated your bookmark/favorite previously please change it back to the old address: http://pw1.netcom.com/~jkbarton/nomid/Html/nomid_home_page.htm.   Sorry about that.

4 July 2002:

Two new contacts:  Clare Sammé and Molly Campbell, both from the UK.   See Contacts, Stories and Photos pages for more details.

6 May 2002:

New photo of Miranda Putvin, see Photos page

16, 19 Feb 2002:

Links to Children's Chronic Arthritis Association (CCAA) and the Paedriatric Rheumatology European Society (PRES) added to bottom border of every page and the start of the Articles page.  Contacts' location information and map updated on Members Page

8 Feb 2002:

New contact: Kim Wisniewski and her son Phillip.  See Members page and Stories page for details.  New email address for Terry and Camille Lieffers.

1 Jan 2002:

Happy New Year!   During 2001 the NOMID website received 1640 hits.    Since the website started in Aug 2000 we have received a total of 2132 visitors (or 1400 unique hits).

27 Oct 2001:

New conctact: Zachary Eise.  See Members page and Stories page for more details.    'Where we live' map added to Members page

14 Oct 2001:

New conctact: Marcia Janower.  See Members page and Stories page for more details.    New photos of Alice Lieffers and Alex Barton

5 Sept 2001:

New member: Buhyan Kim.  See Members page and Stories page for more details.  

11 Aug 2001:

New photos of Miranda Putvin, Photos page

21 July 2001:

New member: Lee Parker.  See Members page and Stories page for more details.

23 June 2001:

Photos of Isabelle Hand and Alice Lieffers at Easter added to Photos page (photos were sent some time ago but I only just noticed they weren't on the website).

13 May 2001:

Personal story of Glenn Hand added to Stories page.  

New member: Sebástian Jesús Burgo.  See Members page and Stories page for more details.

Abstract received from Gerard: 'A FAVORABLE RESPONSE TO COLCHICINE THERAPY IN NEONATAL ONSET MULTISYSTEM INFLAMMATORY DISORDER (NOMID/CINCA)'  added to Articles page.    

2 May 2001:

Online translator added to bottom of each page.  The translations are a little dubious sometimes but it's a handy utility all the same. New pictures of Miranda Putvin and Alex Barton on Photos Page

15 April 2001:

New member added: Dario Eberlein, see Members page.  Parents Tanja and Hans would like to get in touch with other German speaking families with Nomid children

2 April 2001:

New member added: Daniel Howlett, see Members page, Photos, and Personal stories.   New photo of Alice Lieffers also on Photos page

10 Feb 2001:  

Photos page updated with pictures from the Noordhof family's visit to the UK.  New photos under Susan Price, Holly Lim, Eline Noordhof.   

1 Jan 2001:  

Members page updated with Susan Price's details

31 Dec 2000:  

Members page updated with Kerstin Rohland's birthday.

Web statistics update:  492 total visits, 308 unique visits (does not include repeat visits by the same visitor) since 6 Aug 2000.   Busiest months:  December then August.  Website can be found by searching on 'nomid' in either the Yahoo or Alta Vista search engines.

28 Dec 2000:  

This 'What's New' page!   Check  this page to find out what is new since the last time you viewed the website.   To keep it manageable, this page will not keep track of new mail sent to the egroups bulletin board.   Look for the shortcut links at the top of each page on the website.  A   short notice on the main home page will let you know the date of the most recent update.  

New links to recent online articles: 

23 Dec 2000:  

New Contacts: Glenn Hand, Shannon Maassen, Susan Price, Tanja Schargitz,    -- See 'List of Members' page.   New Photos for Tilly Bailey, Alex Barton, Glenn Hand -- See 'Photo Gallery'